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Most will list patient groups by country: USA: 1. NORD (National Organization for Rare Disorders) is the American national alliance
2. ORD (Office of Rare Diseases), a service of the NIH (National Institutes of Health)
3. GENETIC ALLIANCE
Canada: 1. CORD (Canadian Organization for Rare Disorders) is the Canadian national alliance
Europe: 1.Orphanet: the Orphanet website lists many patient organisations in different European countries and Morocco
2. National Alliances in Europe: Belgium: Trefpunt
Rare Disorders Belgium (RDB) Belgian Alliance for Rare Disorders
Denmark: Rare Disorders Denmark Sjældne Diagnoser
France: Alliance Maladies Rares French Rare Diseases Alliance
Germany: Allianz Chronischer Seltener Erkrankungen (ACHSE) German National Alliance for Chronic Rare Diseases
Greece: Greek Alliance for Rare Disease - (PESPA)
Italy: Federazione Italiana Malattie Rare (UNIAMO) Italian Federation for Rare Diseases
Netherlands: Vereniging Samenwerkende Ouder- en Patiëntenorganisaties (VSOP) Working Group on Rare Disorders
Spain: Federación Española de Enfermedades Raras (FEDER) Spanish Rare Disease Federation
Sweden: Sällsynta diagnoser The Swedish Association of Rare Disorders
UK: Genetic interest groups (GIG)
Australasia: Taiwan: Taiwan Foundation for Rare Disorders
New Zealand : New Zealand Organisation for Rare Disorders
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